Friday, November 22, 2024

A DIFFICULT PHONE CALL FOR KELLY AND I TODAY

I thought it a bit odd yesterday when 3 emails I had sent Kelly remained unopened.  And I saw half a dozen other things in our 'inbox' also unopened that Kelly usually opens.  And since our 2 p.m. phone call she hadn't phoned back a couple times.  With nurses coming and going tending to things it's easier for Kelly to pick a time to call than me to call her when she's in the middle of something or sleeping.  When no call came by 8 o'clock last night I picked up the phone and called her.  A faintly weakened and barely recognizable voice scratched out a meek 'Hello'.  It was Kelly and she was in pain.  Being immobilized in bed hooked up to a number of IV lines she has not been able to get up to even walk around and those two compression fractures in her spine have become very painful.  And, she had not yet been given any solid food.  As we talked, the positive bounce in her voice wasn't there and she sounded tired and discouraged.  It was obvious she had had a difficult day.  She hasn't been able to access her iPad because she can't sit up straight and that explains the unopen emails. Our phone call didn't last long as she waited for a nurse to bring her stronger pain meds.  The Covid advisory on her eighth floor is still in effect with 'No Visitors'...............

It was a very disheartened Kelly who I spoke with early this afternoon saying some Physiotherapy people had managed to get her up on her feet for a short walk but it didn't go well.  Doctor Scarrow, the head liver surgeon who both Kelly and I have met, came in to talk to her.  He's a straight shooter and told her that despite their best efforts it was very unlikely a matching liver for Kelly would be found.  He also said that despite her spunk, determination, and positive attitude her condition has worsened to the point now where it is likely that her name will be removed from the liver transplant list.  She wouldn't be able to survive a liver transplant now.  A meeting of the liver transplant team on Monday will decide this.  He said the only thing they can do for her now is give her stronger meds to slow down the bleeding and ease the compression fracture pain.  Palliative care was mentioned.  It was a difficult phone call for Kelly and I.  She is hoping to come home Sunday depending on her hemoglobin number. I wished I had happier news...........but we have run out of happy.

Al's Music Box:)) Teen Age Idol is a song written by Jack Lewis and performed by Rick Nelson. The song reached No. 2 on the Easy Listening Chart, No. 5 on the Billboard Hot 100, in 1962.  The song is ranked No. 77 on Billboard magazine's Top 100 songs of 1962.

GROANER'S CORNER:(( After spending 3-1/2 hours enduring the long lines, surly clerks and insane regulations at the department of Motor Vehicles, a lady stopped at a toy store to pick up a gift for her son. She brought her selection - a baseball bat to the cash register.  "Cash or charge," the clerk asked.  "Cash," she snapped. Then apologizing for her rudeness, she explained, "I've spent the afternoon at the motor-vehicle bureau. I am not too sane right now!!"  "Shall I gift wrap the bat?" the clerk asked sweetly, "Or or you going back?"

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- “What happened to the rich guy with the double chin? He made a four chin.”

Diner: "Pardon me, waiter, but what kind of pie is this?"
Waiter: "What does it taste like?"
Diner: "I don't know."
Waiter: "Then what's the difference?"

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The psychology instructor had just finished a lecture on mental health and was giving an oral test.  Speaking specifically about manic depression, she asked, "How would you diagnose a patient who walks back and forth screaming at the top of his lungs one minute, then sits in a chair weeping uncontrollably the next?"  A young man in the rear raised his hand and answered, "A basketball coach?"
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54 comments:

  1. So sorry to hear about Kelly….sending prayers and hugs. Take care of yourself and Pheebs.

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  2. You are so kind to include your invisible friends with Kelly’s Journey. We care so much and sit from afar. I wish I could bring you a plate of cookies. I hope they’ll be able to manage her pain. I too am praying for both of you.

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  3. Oh, Al…Diana and I are so sorry to hear this. We are praying for both of you (and Pheebs too).

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  4. My arms are hugging all three of you Al. I am so sorry to read this tonight.

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  5. So sorry to hear that. Take care.

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  6. Oh Al, I burst out crying when I read your last words - "we have run out of happy". I was worried that we might be reaching this point. Prayers that Kelly gets relief from pain & that she gets to come home Sunday. You & Pheebs stay strong - All My Love, Always - Cindy in Ohio

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  7. (Kawartha Gal) I am so sorry to hear this…My heart aches for you both.

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  8. Many years ago, my father made a decision to stop dialysis. He said a life in pain wasn’t a life worth living. My mother agreed.

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  9. Al I'm saddened to read your post this evening .Prayers for comfort and peace for both of you and healing for your precious Kelly💕🙏

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  10. Such sad news....but Kelly must decide how much more pain she can take. So sorry for you both and for Pheebs. Sending all the positive energy and vitality that I have.....love you all so VERY much......

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  11. So sorry to hear this. Hoping Kelly feels well enough to come home. Take care

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  12. Sending love, hugs and prayers for both of you.

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  13. Al, nothing I say can make this any better for Kelly and you but please know that I care and we, all of your readers do care. You both are in my prayers and I hope they can keep Kelly pain free and she is home soon.

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  14. Can do nothing but repeat what others have said. No words. Only love coming to the Bayfield Bunch from Texas. And, yes. Thank you for including us in the journey.

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  15. My brother had a similar outcome - he suffered with cancer and many doctors over a number of years, and finally said enough - no more chemo, and he passed away within a few weeks. So sorry that there is nothing any of us can do ......

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  16. My heart breaks for you both. I pray they can get her pain under control. Thank you for the updates. Caring from North Carolina.

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  17. We need a miracle. I am gutted so cannot imagine how painful this must be for you and Kelly. I don't even know you but you have always felt like family. I am praying for Kelly as if she is my kin. God bless.

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  18. We’re very sad to read your post tonight Al. Words are inadequate. Kelly is such a one-of-a-kind wonderful human being. We’re sending our thoughts, and prayers to you all.

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  19. I wish there was something I could do. Sending prayers.

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  20. There is still a chance the committee will might override the Surgeon's decision.
    We're still Praying for all of you.

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  21. Oh Al, so sorry it has come down to this. Kelly has fought so hard. I hope you can get her home. Palliative care would be a big help to you both so don't hesitate to get started. Hugs!

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  22. we are so very sorry it's come to this, there are no words, Love you both.
    J & S

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  23. Oh. Wishing I could somehow make things easier, better at this point. You have both been so strong and brave and loving life.

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  24. My heart aches for all of you. I pray that her pain can be eased and that you can have some very precious time together. We all love ypu guys and are heartbroken for you.

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  25. Al I have faith that miracles exist,and pray that you, Kelly and Pheebs have better days ahead.l
    hope you stay in touch with your good buddy Richard,and take good
    care of yourself.You,. Kelly and Pheebs are in my thoughts and prayers -Mary

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  26. So sorry to hear of their decision. My heart and prayers are with you both.

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  27. Oh Al this was so hard to read and I imagine even harder for you to write. The Kelly you have shared with us is such a strong positive person so it is so sad to hear she is having such a bad time. Your words express how much you love her so I know how hard this is for you and Pheebes. You are all in our thoughts and prayers.

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  28. Sorry to hear of this news. We will continue to keep you both in our prayers.

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  29. As all above has said, I wish there were words that could be said that could help. So sorry and praying for the both of you.

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  30. I am so very sorry to hear the sad news. I will keep you and Kelly in my thoughts and prayers.

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  31. Thank you for sharing with all of us the good and the bad in the circle of life. It will be our turn one day too. Palliative care is NOT giving up and can be wonderful. I sense that you and Kelly are very private people but I hope you will open your home to caretakers.

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  32. Continuing to pray for both of you.

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  33. ❤️‍🩹So very sad. 🙏 Praying for God to ease Kelly’s pain and let her come home to you.

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  34. Such sad news, you are in our thoughts and hearts.

    Deb

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  35. Prayers are continuing for Kelly and that there will be relief from the pain. The Bayfield Bunch is like family to so many of us and family hold each other tight in times of crisis. Take care.

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  36. So sorry to hear this Al. You an Kelly are in my prayers.
    NHJim

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  37. We continue our thoughts and prayers for you both- Mary Lou

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  38. Praying for your comfort & dignity, Kelly. Wish love was the cure ~ sending you a ton!

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  39. Echoing everyone else's comments above. So sorry to hear this news and thinking of you all. ❤️ We have never met but I have followed your journey in life for many years. I know you are a private person, but also hope that you know that you have many silent friends out here in the world around you.

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  40. I know it was difficult news to hear. I pray that stronger meds will give her a chance to come home to you and Pheebs. So sorry it has come to this. Take care. I am thinking of you two.

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  41. I'm so sorry to hear that she's doing so poorly, bless you both, you'll remain in my prayers, hugs.

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  42. Thinking about you and Kelly. Wishing better days for both of you in the days ahead.

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  43. Still keeping both Kelly & you in my thoughts. Even the strongest people get tired, and she's been fighting so many issues for a long time. I hope the doctors can get her on a regimen to control her pain & come home soon. Continuing to pray for a miracle.
    Renee Z

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  44. Obviously not the news we wanted to hear Al, but thank you for the update, and for continuing your excellent blog through it all. We hope Kelly will get some pain relief at least. Gord.

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  45. God's Peace, which passes All understanding, is there for Kelly and you. You are both in our prayers.

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  46. There's no more I can say .that hasn't been said in the above comments. I did some reading about palliative care. That looks like a good direction. I hope that type care will be available soon. Blessings...

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  47. You are both in our thoughts and prayers.

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  48. How thoroughly disheartening for you both and for all of us who have been wishing and hoping for that magical call. Big hugs xo

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  49. You and Kelly have nourished a huge community of followers over the years, and we clearly all feel the sads from your phone call. Hopefully they can get her pain and fluids managed so she can get home to you and Pheebs and out from under the COVID lockdown. Adding my hugs to the three of you.

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  50. As I read back to catch up, I see the root cause of the ascites. So sorry to see the path closing for transplant. My wife had a double lung transplant 19 months ago & there is constant surveillance on her liver. I hope you have an outcome like we did. With the fluid removal, I hope that buys her more time & increased strength. You both have many people rooting for you.

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  51. So sorry to hear this news .Hugs to you all.

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